Frequently asked questions

Q. Will I have to pay for study drug or research visits?

Whether or not study drug is included is study specific. Studies that are observational are less likely to cover them but in most cases study drug is provided free of charge. You are not billed for research visits and with some studies you may be reimbursed for time and travel.

Q. Why should I volunteer to be on a study?

Most patients enter a study as a result of their diagnosis and the treatments available or lack thereof. They have the desire to take a more active role in their health care options and want to help future generations.

Q. What happens to me after the study is over?

The answer to this question depends on the study. Some studies use medications that are already on the market while others are using investigational drugs. Long term treatment options can be discussed with the study provider.

Q. How long do I have to be involved with a study?

Some studies may last only a few weeks, while others go on for several years. Patients can choose to discontinue a study at any time as participation is entirely voluntary. The more patients that complete the study, the more complete the data will be.

Q. What is required of me for the study?

Each study will have different requirements and a specific schedule of appointments. Some visits entail physical examinations, imaging, blood draws, urine samples, electrocardiogram, walk tests, cognition tests, quality of life questionnaires, daily diaries and appointments with specialists outside of our practice.

Q. Do I still see my primary care provider while I am participating in a study?

Your research visits relate only to the study so you should continue to see your primary care provider and any other specialists you normally see as needed.